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“My Heart Will Go On” hitmaker Celine Dion is at present battling Stiff Person Syndrome. Last spring, the 55-year-old singer canceled her Courage planet tour due to complications from her illness. The songstress shared in May 2023 that it was a “tremendous disappointment” and mentioned that refunds would be offered to fans. “It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again,” she mentioned in a statement.

Despite her wellness problems, Celine nonetheless produced a surprise look for the duration of the 2024 Grammy Awards on February 4. She presented the award for Album of the Year which went to Taylor Swift. Celine received a standing ovation as she walked out on stage. “Thank you all. I love you right back,” she mentioned to the audience.

Celine is a single of the most well-known singers in the planet. Not only is she identified very best for her iconic song in the Titanic film, but she’s gone on to win a total of 5 Grammy Awards in her profession. In addition, the blonde beauty became a Las Vegas residency legend with more than 15 years of residency time beneath her belt! With such a vivacious character and a really like of performing, it appears crazy to feel that the final time the Canadian powerhouse has performed reside was on July 5, 2019 at the BST concert in Hyde Park, London.

After postponing her tour many occasions post-pandemic, in December 2022, Celine produced the announcement that she was suffering from a incredibly uncommon wellness situation, a single that may perhaps retain her from the stage for a incredibly extended time. After canceling her tour in May 2023, Celine promised that she wouldn’t “give up” and mentioned she hoped to get on the road when her strength is back. Most not too long ago, Celine released a trailer for her new documentary which chronicles her battle with the situation. Here’s anything to know about her wellness situation,  how she’s performing right now, and extra.

Celine Dion Diagnosed With Stiff Person Syndrome

Celine shocked the planet with somber news in 2022 when she revealed her Stiff Person Syndrome (SPS) diagnosis with an emotional video across social media, like Instagram. The uncommon situation, which usually impacts about “about one or two in a million people,” is identified to trigger a series of neurological wellness problems, per John Hopkins Medicine.

“I’m sorry it’s taken me so long to reach out to you,” Celine mentioned in an Instagram video at the time. “I miss you all so much and I can’t wait to be on stage talking to you in person. As you know, I’ve always been an open book and I wasn’t ready to say anything before. But I’m ready now. I’ve been dealing with problems with my health for a long time and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through. Recently, I’ve been diagnosed with a very rare neurological disorder called stiff person syndrome, which affects something like one in a million people.”

What Is Stiff Person Syndrome?

Stiff particular person syndrome can trigger muscle rigidity and spasms, heightened sensitivity to sound stimuli and lights, as effectively as emotional distress that can trigger muscle spasms, according to the National Institute of Neurological Disorders and Stroke. It is so uncommon, it can take years to diagnose and at present, there is no remedy.

“It frequently is associated with muscle spasms, which could be quite severe. These can cause falls, severe pain and significant disability,” mentioned Dr. Emile Sami Moukheiber of the Stiff Person Syndrome Center at Johns Hopkins Medicine, to CNN. “Falls from severe spasms are very common. These spasms can be precipitated by startle, severe emotions, cold weather.”

The truth is that the illness can manifest in such intense approaches that some people with stiff particular person syndrome, like this young lady on TikTok, can not even stroll on their personal.

How Long Has Celine Dion Been Sick?

Celine has been struggling with SPS for more than a year, as she also had to postpone her tours in April 2022. “I’m so sorry we have to change our tour plans for Europe one more time; first we had to move the shows because of the pandemic, now it’s my health issues causing us to postpone the shows. I am doing a little bit better…but I’m still experiencing some spasms,” she revealed by means of Instagram on April 29, 2022. The mom-of-3 not only had to postpone the tour in April 2022, but she also was forced to do the very same in December of that year as her situation had not enhanced adequate to return to the stage.

In April 2022, Celine mentioned she was “doing a bit better”, nevertheless, the recovery was “going very slow.” And eight months later, sadly, Celine was not recovering at the speed she had hoped. The situation impacts her potential to stroll, use her vocal cords at “100%” capacity, and extra. “I have a great team of doctors working alongside me to help me get better, and my precious children, who are supporting me and giving me hope,” Celine assured her supporters in Dec. “I’m working hard with my sports medicine therapist every day to build back my strength and ability to perform again.”

The talented artist initially came forward about the wellness situation in January 2022, nevertheless, she had not revealed the official diagnosis but. Celine released a statement by means of Instagram and shared with her 5.5 million followers that “severe and persistent muscle spasms” are “preventing her from performing.”

How Is Celine Dion Doing Today?

Celine appeared to be on the road to recovery, as she made new music for the 2023 film, Love Again, starring Priyanka Chopra. The Canada native appeared in the film with Priyanka and Outlander‘s Sam Heughan. Celine took to Instagram in Nov. 2022, just weeks ahead of her diagnosis clip, to announce her look the rom-com. “See you at the movies! Celine is starring alongside @priyankachopra and @samheughan and releasing new music for the romantic comedy LOVE AGAIN (new title!) coming to movie theaters MAY 12 (new date!),” her group captioned the post.

Her sister Claudette reportedly spoke to a neighborhood news outlet in Canada about her sister’s wellness, as reported by Marca, in January of 2023. “I am confident that life will give her back what she gave because she is an extremely intelligent woman, very generous and talented and in love with life as well,” Claudette mentioned at the time. “Rather than crying over her fate, I try to send her positive vibes in the hope that one day she will go back on stage. I truly believe in the power of love. I wish her the best of luck, that’s for sure. She is surrounded by specialists as she works to recover.”

Celine has continued operating to enhance her situation. With the announcement that she was canceling her Courage planet tour, she shared that she nonetheless couldn’t hit the road. “I’m so sorry to disappoint all of you once again. I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%,” she mentioned on May 26, 2023. “I want you all to know, I’m not giving up… and I can’t wait to see you again!”

Months following Claudette’s final update on her sister, she reportedly spoke to Le Journal de Montreal (via SheMazing) in August 2023 to provide somber news about Celine. “We can’t find any medicine that works, but having hope is important,” Claudette reportedly told the outlet. The concerned siblings noted that she thinks Celine demands sufficient rest. “I honestly think that she mostly needs to rest. She always goes above and beyond, she always tries to be the best and top of her game,” she added. “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”

In addition, Claudette revealed that her sister, Linda Dion, has moved in with Celine is reportedly her reside-in caretaker in Las Vegas. “When I call [Celine] and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard,” she told the outlet. “She’s listening to the top researchers in the field of this rare disease as much as possible.” Despite the ongoing wellness struggles for their siblings, the household reportedly “trusts” that factors will enhance.

In November 2023, Closer reported that Celine “feels stronger now” regardless of getting “gone through hell” more than the previous year. “She doesn’t want to hide out at home any longer,” an insider told the outlet. “She has good days — even weeks — and she’s committed to sharing those times with her children.”

A month later, Claudette opened up once again about Celine with an additional update. “She’s working hard, but she doesn’t have control over her muscles,” Claudette told 7 Jours (by means of the Daily Mail) for a December 2023 interview. “What breaks my heart is that she’s always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.’”

Still, the household hasn’t offered up hope for Celine returning to the stage. Claudette explained, “It’s true that in both our dreams and hers, the goal is to return to the stage. In what capacity? I don’t know.”

A report followed days later, claiming Celine is operating on regaining muscle manage with physicians. “Celine is a fighter,” a supply close to the singer told US Weekly for a December 22, 2023 report. “She doesn’t have as much control over her muscles as she did before, but she’s working with doctors and physical therapists to get better. ” The insider added, “Celine has been taking time to focus on her health but plans to take the stage again once she is given the go-ahead by her medical team.”

Oh yeah, Céline Dion is healing and so is nature pic.twitter.com/TA7F8P2uwY

— Miguel (@elasticdijon) March 22, 2024

In March 2024, Celine was observed enjoying a Bruins game, exactly where she even stood up to happily play air guitar, according to a viral social media video.

Celine released the initially trailer for her documentary I Am Celine Dion, which chronicles her battle with Stiff Person Syndrome on May 23, 2024. The trailer gave fans a glimpse of how her diagnosis impacted her physically and emotionally, as effectively as her journey to return to the stage. The documentary will be offered on Amazon Prime on June 25.